March 10, 2008

That “Break” Can Come ANYTIME Now

Big I had her follow-up finger stick today.  The nurse asked Mr. BBM to put pressure on her finger for 30 seconds after.  When he released, her finger began dripping again.  She also had two petichial spots in her mouth that weren’t there on Friday.  Despite the platelet reading being better today, the doctor is convinced that she does indeed have ITP.  I spent the weekend thinking this was a temporary set-back and today I just can’t deal with any of this. 

She has to have more blood work done on Wednesday and they are sending all of her results to a specialist at a hospital an hour away.  She can’t go outside for recess, participate in gym class, or take karate for the time-being.  She’s signed up to play t-ball with her best friend and the doctor said we’ll have to wait and see whether or not she’ll be able to play.

She’s back at school today and I just want to be there, shielding her from anyone who might run into her or hurt her in any way.  I can’t imagine being told I couldn’t go out to recess or play in gym class as a kid.  She’s going to be devastated.  I am just reeling today with the weight of it all and just don’t know what to do with myself. 

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Posted by on March 10, 2008 in Mental Strain for Mama | 13 Comments

Comments

13 Comments on That “Break” Can Come ANYTIME Now

  1. Nat on Mon, 10th Mar 2008 11:47 am

    2. Hugs.

  2. Rachel Green on Mon, 10th Mar 2008 12:36 pm

    3. On the other hand if it is ITP it should pass in a year My best wishes to you all.
    see http://www.nhlbi.nih.gov/health/dci/Diseases/Itp/ITP_WhatIs.html

  3. Lisa on Mon, 10th Mar 2008 1:22 pm

    4. Prayers for all of you!

  4. Calista on Mon, 10th Mar 2008 2:04 pm

    5. Hugs and prayers.

  5. sizzle on Mon, 10th Mar 2008 3:00 pm

    6. I’m so sorry, BBM. I hope everything turns around soon. You are in my thoughts.

  6. Lydia on Mon, 10th Mar 2008 4:02 pm

    7. I’m so sorry. What a kick in the head. I will be thinking of you and your little girl — and hoping for the best.

  7. Papa Bradstein on Mon, 10th Mar 2008 9:57 pm

    8. We’re holding you in our thoughts and prayers, sending our love.

  8. jody on Tue, 11th Mar 2008 3:21 pm

    9. Hugs!!!

  9. Renovation Girl on Tue, 11th Mar 2008 7:25 pm

    10. I said this already, but know that her teachers are watching her carefully and will love her and help her until she is well.

  10. Jerry on Wed, 12th Mar 2008 8:32 am

    11. Be strong! These trials are but for a time, and if you make good use of them, you will be better off for them. In the meantime, you obviously have the thoughts and prayers of many to carry you and yours.

  11. Topsy-Techie on Wed, 12th Mar 2008 10:22 am

    12. Thinking of you lots and sending ((((hugs)))). I know first hand what its like to have a child go through something critical, and unknown, and scary, and it changes your whole world. Wish I lived close enough to bring over a casserole and some hankies (a southern tradition for difficult times). Let us know if there is anything we can do from afar…

  12. PerpetualBeginner on Wed, 12th Mar 2008 12:22 pm

    13. Hugs.
    I don’t know if it will be useful to you, but Flea at One Good Thing ( http://buggydoo.blogspot.com/2008/01/what-do-you-think-life-is-trying-to.html ) has a son with ITP, and several posts on the subject.

  13. Miss Chris on Thu, 13th Mar 2008 11:18 am

    14. I too am sending hugs your way. I’m very familiar with ITP because my mother has it.

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