March 10, 2008

That “Break” Can Come ANYTIME Now

Big I had her follow-up finger stick today.  The nurse asked Mr. BBM to put pressure on her finger for 30 seconds after.  When he released, her finger began dripping again.  She also had two petichial spots in her mouth that weren’t there on Friday.  Despite the platelet reading being better today, the doctor is convinced that she does indeed have ITP.  I spent the weekend thinking this was a temporary set-back and today I just can’t deal with any of this. 

She has to have more blood work done on Wednesday and they are sending all of her results to a specialist at a hospital an hour away.  She can’t go outside for recess, participate in gym class, or take karate for the time-being.  She’s signed up to play t-ball with her best friend and the doctor said we’ll have to wait and see whether or not she’ll be able to play.

She’s back at school today and I just want to be there, shielding her from anyone who might run into her or hurt her in any way.  I can’t imagine being told I couldn’t go out to recess or play in gym class as a kid.  She’s going to be devastated.  I am just reeling today with the weight of it all and just don’t know what to do with myself. 

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